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A Day in the Life

October 5, 2009 By Mindy

5 Oct

I get the impression that there are still a lot of people out there who think that having a child with Down syndrome is extremely hard and something they could never do.  Here's a look at a typical Monday in our house.

  • Wake up and feed Juliana.  Liam usually wakes up around this time too.
  • Get Liam out of bed, change diapers, and get the kids dressed.
  • Take the kids into my room and get dressed myself.
  • Downstairs for breakfast.  Cream of Wheat for everyone this morning.
  • Shoes on, strap J in the car seat, out the door at 9:35.
  • OT and speech therapy at a private facility.
  • Back home, it's lunch for me while the kids watch WordWorld on PBS.
  • Lunch for Liam today was scrambled eggs, cheese, and toast.
  • Liam is down for a nap.
  • Feed Juliana.
  • Finish reading Atonement while Juliana is asleep in my arms.
  • Set up the Pack 'n Play and put J in it to play.
  • Take the laundry from the trip and throw it in the washer.
  • Change the sheets on our bed.
  • Clean the bathroom.
  • Feed J lunch.
  • Clean out the kitchen junk drawer.
  • Liam is awake and back downstairs to play.
  • Play with the kids.
  • Feed Juliana.
  • Unload the dishwasher and start on dinner.  Pancakes for dinner tonight!
  • Doug is home now.  The kids and Doug play while I finish dinner.  There's a lot of giggling.
  • Eat dinner.
  • Play, read books, rough house.  I'm on the computer.  Liam gets a time out for smacking his sister upside the head.
  • Bath night tonight.
  • When Doug works out, the kids watch Elmo.  I get some time to myself.
  • Feed Juliana and put her down for the night (fingers crossed!)
  • Liam goes down for the night.

Take away the OT & speech and what do you have?  A pretty normal life, and that's what life with Down syndrome is like.  Normal.  Nothing more, nothing less.

Filed Under: Down syndrome

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Reader Interactions

Comments

  1. yeahso says

    October 5, 2009 at 9:06 pm

    I love normalcy. That applies in adoption too (not as much, I know but its so wonderful to appreciate the mundaneness of it all)

  2. Tricia says

    October 6, 2009 at 10:03 am

    well said. but where are all the tantrums from BOTH your kids???? My kids are not nearly as easy-going as this day sounds! (And it has NOTHING to do with DS, that’s for surE!)

    ๐Ÿ™‚

  3. Robin in VA says

    October 6, 2009 at 6:18 pm

    Ugggg, but I’m tired from reading about your day…after 22 years one forgets what it was like!!

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