Sometimes I feel different than other parents of kids with Down syndrome. I never cried over the diagnosis. I did work through my feelings while knitting a lace shawl but never cried or got angry. I don't worry about school. I don't worry about Liam's future. I know we have a huge supportive family who will do anything for Liam.
I heard something last weekend that set my blood boiling. It made me so angry. And it was about Juliana, not Liam.
At J's 2 month check up, her doctor asked if she would take a bottle. I told the doc we had never tried. The response was she'll never take one now. She'll never. Never. Never. Never. How many times has that been uttered about a child with Down syndrome? Never about mine, but hearing that made me so angry. I don't want to hear it. Never? We'll see about that.
Why did that one sentence about my typical daughter make me crazy? Especially when I've never heard the never for my son. I don't know. All I know is I need to let it go. I rarely experience the negative emotions parenting a child with a disability. I don't like it. I'm letting it go.
As for the bottle, we gave J a bottle last night for the first time. After a few false starts, she hoovered it down like a pro. Never? I think not.
Nautical Knitter says
Never let ANYONE tell you never!
Melissa says
Yes, I think of the word never completely differently. Good for Miss J proving them wrong!!
Megan says
Doctors/”specialists” are so stupid sometimes. I swear. For all that edmucation, they really need to gain some common sense.
CJ says
I’m right there with you, but mostly because I chose to adopt a child with DS and it wasn’t a surprise for me. I chose it. And she has never received a never, and if she does, we will do what you did with the bottle…proove ’em wrong!!
Angie says
Never is such a loaded word and often used by folks with no business using it. I’m glad you are the kind of person that got mad rather than accepting the pronouncement.